20 Products People With Fibromyalgia Should Try For Themselves

Twenty Products People With Chronic Disease Should Try For Themselves

When you struggle every day with the pain, fatigue and or brain fog of fibromyalgia or other chronic disease, it can quickly become frustrating and exhausting – especially since there’s no cure or one-size-fits-all treatment. Finding a product or technique to help ease your symptoms is often a never ending process of trial and error that usually involves a combination of treatments rather than one single solution or fix.

Although there is likely no single item that will totally alleviate your symptoms, many of those in the chronic illness community have found some products (or a combination of products) that help them push through even their toughest flare up days.

1. Epsom Salt – Epsom salt has a number of health benefits, including soothing muscle pain and reducing swelling. Try adding some to a warm bath and give your body time to soak and relax. – Buy the epsom salt above for $27.99 on Amazon.

2. Salonpas Pain Relieving Patches – Salonpas patches are applied on your body directly where you’re hurting and have a topical analgesic that can help relieve muscle aches and pains. They offer several types of patches (i.e. some contain lidocaine, while others provide heat) depending on the type and level of your pain. – Buy the pain patches above for $9.89 on Amazon.

3. Magnesium Lotion – Magnesium is a nutrient that has many health benefits for the average person, but for those with fibromyalgia, its anti-inflammatory properties can be especially helpful. Some use magnesium lotion and let it absorb through their skin. Be sure to talk to your doctor before taking any supplements. – Buy the magnesium lotion above for $18.50 on Amazon.

4. Yeti Hand Warmers – Not only do these gloves look awesome, but they plug in via a USB cord to warm your hands. If you have Raynaud’s phenomenon or get cold often, these fun hand warmers may help. (They also come in slippers, too!) – Buy the Yeti Hand Warmers above for $34.99 on Smoko.

5. Heated Blanket – Not only can a heated throw blanket help keep you warm, but the heat may also be beneficial in soothing some of your aches and pains. – Buy the heated blanket above for $49.26 on Amazon.

6. Deep Heat Gel – The Deep Heat rub delivers both heat and pain relief when applied. “Deep Heat gel! It burns like hell but it works wonders after the initial burning sensation dies down. – Buy the rub above for $6.17 on Amazon.

7. Chillow Pillow – The Chillow Pillow is a cooling gel pad you can use to ease hot flashes or aches and pains due to fibro. You can place it under your back, wrap it around an arm or leg or even put it under your pillow to keep you cool while you sleep. – Buy the Chillow Pillow above for $11.09 on Amazon.

8. Pain Gone Pain Relief Pen -If you need pain relief on the go, this portable pen may be useful. “Paingone – it’s a pen-shaped device that delivers little shocks like a TENS machine. – Buy the pen above for $58.83 on Amazon.

9. Two Old Goats Essential Oil Lotion – Made with goat’s milk, almond oil and six essential oils (lavendar, chamomile, rosemary, peppermint, eucalyptus and birch bark), this lotion promises to help soothe sore muscles. – Buy Two Old Goats Essential Oil Lotion for $28.80 on Amazon

10. Lush 93,000 Miles Shower Jelly – Made with eucalyptus and mint, this shower jelly promises to cool and soothe cramping muscles and ease aches and pains. – Buy Lush 93,000 Miles Shower Gel for $19.99 on Amazon.

11. Tennis Balls – If your muscles are aching and in need of some massaging, a tennis ball may be a helpful tool. You could roll it back and forth where you’re tense or use it to put pressure on trigger points. – Buy the tennis balls above for $8.88 on Amazon.

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12. CBD Lotions and Oils – CBD topicals, such as lotions or oils, are infused with cannabis that, when absorbed through the skin, can help with pain, soreness and inflammation. – Buy the hemp salve above for $18 on Amazon.

13. Skechers – If you struggle with fibromyalgia, finding shoes that are tolerable on your feet may be a challenge. However, many of those with fibro have found Skechers to be a viable option. – Buy the Skechers shoes above on Amazon. (Price varies by size.)

14. Kool Pak Cool Bandage – This bandage cools down when wrapped around your body, providing both cold and compression for inflammation, swelling and muscle strains – no refrigeration required. A downside is they are one-use only. – Buy the Kool Pak Cool Bandage above for $5.03 at Physical Sports First Aid.

15. Thera Cane Massager – Although this device may look a bit odd, it is actually the perfect shape for massaging parts of your back you cannot reach. The multiple treatment balls allow you to work on multiple areas at one time. For those with fibro, this can be helpful in easing sore and tight muscles. – Buy the Thera Cane Massager above for $29.95 on Amazon.

16. Vicks VapoRub – Although Vicks VapoRub may often be thought of as a cough suppressant, it can also be used to relieve aches and pains in your muscles and joints. – Buy Vicks VapoRub for $23.58 on Amazon.

17. Essential Oils – Essential oils can do a lot more than make your home smell nice. Different types are known to have different healing properties, both physical and emotional. – Buy the oils above for $16.95 on Amazon.

18. Biofreeze – Biofreeze is a topical analgesic containing menthol, which is both cooling and pain relieving for sore muscles and joints. – Buy Biofreeze for $9.99 on Amazon.

19. Tiger Balm – Tiger Balm contains a blend of herbal ingredients that can help reduce joint and muscle pain. They offer ointments, rubs and pain relief patches. – Buy Tiger Balm for $10.77 on Amazon.

20. Kindle – Sometimes, when the pain or fatigue is just too much, distractions are the best way to cope. Whether that means watching your favorite TV series, inviting your friend over for movie night or reading (or listening to!) a good book, immersing yourself in a different world can draw your mind away from your battle with fibro – even if just for a little while. – Buy the Kindle above for $99.99 on Amazon.

5 lessons Learned From Fibromyalgia

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5 lessons Learned From Fibromyalgia

Lesson 1: Believe Sexism Is Why We Do Not Have Cure For Fibromyalgia.

Sexism is alive and well in medicine, and believe it is the primary reason why fibromyalgia science is at least 30 years behind where it should be.  Fibromyalgia research has lagged far behind other diseases, bogged down by controversy and a century of arguments about whether it was a “real” illness. People who have fibromyalgia are mostly female and the illness has suffered from a gender bias that has hampered it being taken seriously by medicine. If this illness primarily affected males, think we would have a cure by now, or at the very least a well-funded governmental institute dedicated to finding a cure!

Lesson 2: Having Invisible Illness Is A Double-whammy.

Sufferers show no outward signs of the disease and standard blood testing is normal. Having an invisible illness – one in which you look fine – is a double-whammy, because not only do you have to try to manage your symptoms and grieve the loss of your health, you also have to fight against doctors, employers and even family members that may not believe you or understand your struggle.

Sometimes fibromyalgia feels like carrying a 200-pound invisible backpack. If others could see the backpack of fatigue and pain we carry, they would better understand our limitations. And your employer may be more forgiving when you need accommodations: “Wow, of course you need an ergonomic chair, you have a 200-lb backpack weighing you down!” But truthfully, employers, family and doctors don’t always understand or see the burden, which just makes the burden heavier.

Lesson 3: Pain Is Subjective Experience Cannot Be Truly Understood By Another.

Everyone experiences physical pain, and doctors as humans have usually experienced the typical pain that is described to them by their patients. Bad sunburn pain, check. Ankle sprain, been there. Sore throat, yep, had one last month myself. Doctors have a personal vocabulary to understand those types of pain.

But come into the office trying to describe a deep, aching, burning muscle pain that is migrating throughout your body, and you will get blank stares. I still remember the you-are-a-crazy-person look a doctor gave me when I tried to explain that it felt like my neck was tired of holding up my head.

Lesson 4: Most Doctors Still Do Not Know Much About Fibromyalgia

Our understanding and ability to treat fibromyalgia has made huge progress. Yet most of this information has not filtered down to the actual doctors providing care. The majority of care falls to busy and overwhelmed primary care providers who don’t have time to go searching for new treatment ideas among the sea of medical publications.

Lesson 5: Fibromyalgia Is Not Caused By Depression, But

Can Cause Depression.

Several of doctors suggested my symptoms were caused by depression. But they were wrong. Was indeed depressed, but only because life was falling apart, doctors could offer no help and was exhausted and hurt all over. Anyone dealing with that would be depressed!

Know that pain can actually cause changes to the brain that activate the areas associated with depression. So while depression does not cause fibromyalgia, fibromyalgia most certainly can cause depression!

5 lessons Learned From Fibromyalgia

How to Solve the Biggest Problems With Memory Issues

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Memory Issues At Home

This world can be tough to navigate for someone with memory issues. When friends and family don’t understand what’s going on, it can cause devistating relationship issues. ake the mistake of forgeting a child’s ballgame or recital? The child might get upset and think you didn’t care enough to go. The other parent may also get upset and think you’re being neglectful or selfish. When this happens, not only are you, the one with the condition, dealing with your own guilt over missing something important to your child, but now you’re having to deal with your family’s disappointment and accusations as well. Forget a birthday or anniversary? Forget something your spouse told you yesterday? If he or she reacts to this in anger and frustration, possibly making accusations, your self-esteem can plummet.

Memory Issues At Work

Work performance can suffer too when someone is experiencing memory issues. The person might make mistakes on the job which can lead to them getting fired. Though you are not required by law to disclose any diagnosis to your employer, some openness and honesty about your situation goes a long way. If your coworkers know what’s going on with you, they can might be willing to help pick up the slack. Your Human Resources department should also be made aware of any condition that may interfere with your performance at work. If they are aware that something is going on, it is possible you could be transferred to a position that is easier to handle, be given a lighter workload or have your hours reduced. Your job can work with you to an extent as long as they’re aware of what’s going on, although it’s not reasonable to expect them to always cover for you or excuse your mistakes. If you have an intermittent illness that affects your memory or performance, you can utilize FMLA (Family Medical Leave Act) in some cases to take time off until your normal functioning returns. Plan ahead for if/when the time comes that you can no longer function at work and need to look into applying for disability.

Memory Problem With Doctors

Forgetting a doctor’s appointment can unfortunately get you written down as a “no show” and there may be a charge for not giving them 24 hours’ notice. You can reschedule, but it may be weeks before your next appointment rolls around. That’s a long time to wait when you’re having issues affecting your daily life that need to be seen to. Even worse with your much needed overpaid specialists – it can often be months before you can get in to see them. If you miss too many appointments, they can even “fire” you as a patient for noncompliance. They you may be labeled as noncompliant for other reasons as well, such as forgetting to take your medication as prescribed. Maybe you accidentally take it too often because you forgot you already took it earlier. Maybe you forget to take it at all because you can’t remember if you already did or not. Maybe you forget to refill your prescriptions on time so you’re not able to take them for a few days until you can get to the pharmacy. When you give vague answers to your medical providers, it raises a red flag in their mind that something is off. You could find yourself mistakenly labeled as noncompliant, attention-seeking, drug-seeking, etc. It is extremely important for you to be as open and honest with your doctor as you can about your memory issues. You want them on your side, not working against you because of a misinterpretation of your actions.  I personally reley on my pill cases to keep track of whether or not I have taken my medicines.

Support Groups

Find a support group! There are others out there who are going through the same thing as you, or something similar. It helps to talk to people who understand what you’re going through. You may not get validation and support from those closest to you, but you can get it from people in similar situations. They may also have some tips and tricks for you that helped them deal with their symptoms.

 

 

It can sometimes be a sign of something else going on with your body. Memory loss doesn’t usually happen on its own, especially in younger people. Elderly dementia happens, of course, but most of the time there’s something else going on, the memory issues simply a symptom of a larger problem. There are many mental health and physical health issues that can lead to brain fog, memory loss and decrease in cognitive function, either permanently or intermittently. Getting officially diagnosed and receiving proper treatment can greatly improve all symptoms of your illness, not just the memory issues. Unfortunately, many individuals go for years without a diagnosis, so be your own advocate and don’t give up on getting to the bottom of your health issues. Enlist someone you trust who can help you remember your appointments, write down your symptoms and go to appointments with you. Forgetting to tell the doctor some of your symptoms makes it that much harder for him or her to come to a proper diagnosis.

Be prepared at all times. Wear a medical alert bracelet or carry a card in your purse or wallet. Keep a list of all medications and be sure that list is current. If you have intermittent memory loss, or intermittent difficulty with speech, this should be written down and kept in a place that emergency personnel can easily find. If you’re unable to tell them what your allergies are, what medications you’re on or what your medical diagnosis is, there is a risk of emergency personnel giving you something harmful. Therefore, it is important for them to be able to look at your bracelet or a card in your wallet to get this information in case you’re unable to tell them. Keep your emergency contacts listed and up to date as well.

Plan for long-term care before you need it. Don’t leave that decision up to your loved ones to make. Too many people wait until it’s too late to make any plans. Choose a person you trust to make decisions for you and designate them your Power of Attorney for when the time comes that you need someone else to be your decision-maker. Tell them while you still are of sound mind what your wishes are so they can carry them out on your behalf. Your family may not want to talk about things like this, so you may have to be the one to bring it up. Their emotional burden will be eased if they have your help making plans while you still are able.

About: Writer Jeanette Hall

Picture Of Jeanette Hall

In her manual wheelchair.  Uses the chair to conserve what little strength she has to use each day.  The wheelchair is due to a disease that runs in her mother’s side of the family.

Was Not Diagnosed

Until over a year after she married her husband.  After her diagnoses, the rest of her family was finally given the name for their problems.  The local doctors just kept telling them they were all nuts!

Now her mother, her mother’s sister, and her two female cousins (her aunt’s daughters) all have an explanation for why their bodies decide  not to function properly.

They now know why, but there still is NO known cure.  Their vision goes out, coordination tends to be nonexistent, and legs may stop working, that is just the tip of the iceberg with Multiple Sclerosis!

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Saving Money While Living With Multiple Sclerosis

Who Doesn’t Want To Save Money When Dealing With Medical Issues?

Handling Multiple Sclerosis

People who are suffering from any of the Multiple Sclerosis varieties (or know someone who does) have to let their feelings of daily confusion about what is happening to their lives get out or they may EXPLODE!!  Cleaning up after an explosion can be quite messy for the best of people who are in good health, so imagine doing it when you may not be able to stop shaking or even stand up while vomiting all over the place!  Not a pretty picture, is it?

Keep Hands On Wallet At All Times

Keeping a supply of generic Dramamine may help stop the spewing of your last meal on the floor (doctors will probably try to dispense the pricey name brand drugs), but try the generics if you are not allergic to any of the ingredients (money saving tips).  With all the medicines a person with MS has to swallow each day, try to keep the price of each pill that you wash down your gullet more cost effective.

You will be pleasantly surprised about the alternatives that exist to name brand solutions.  Just takes a little investigation time that will pay off with great dividends by saving a few pennies with each usage of the more reasonably priced product.  Even better solution may be to start shopping where you can purchase your pills and other life staples at a discount and/ or in bulk!

Make Pharmaceutical Friends

Let your local Pharmacist know that you read each prescription’s paperwork that is sent along with the medicine in great detail, by calling if you suspect there may be a negative reaction with other medicines in your normal daily routines.  You are not being annoying, you are just protecting both yourself and the pharmacologist in case of a chance of  interaction! A pharmacist in the family was the first person to stumble blindly into the fact I might have MS by me asking if he knew anything about a drug by the name of Avonex!

Continue reading “Saving Money While Living With Multiple Sclerosis”

Intentional Blogging: Lesson #4

Type

Topical

Pro’s- Endless supply of writing research available on the internet for free!

Con’s- Having to cut out way too many interesting topics due to personal time restraints.  Risking missing the one BIG break because of my inability to keep up fast enough.

  1. Multiple Sclerosis Clinically Isolated Syndrome
  2. Multiple Sclerosis Relapsing-Remitting Problems
  3. Multiple Sclerosis Primary Progressive Difficulties
  4. Multiple Sclerosis Chronic Progressive Challenges
  5. Multiple Sclerosis Secondary Progressive Horror Stories
  6. Fibromyalgia Added Headaches
  7. Diabetes Type 1: What Is Happening To My Body?
  8. Diabetes Type 2: Ups and Downs
  9. Parkinson’s Disease: One Shaky Episode After Another
  10. Depression Is Not Always Your Fault!
Personal

Pro’s- Face it, it is my life after all!

Con’s- Do I really want to blog about all my stupid choices in life?  Doubt my friends would want to be dragged into this hideous display of our lives!

  1. My Diagnosis’s Story
  2. Growing Up In The Middle Of Nowhere U.S.A.
  3. Being Classified As Gifted In Third Grade
  4. Molested And Raped By Man Who Should Have Been My Protector
  5. The Only Instrument Tried To Play But Couldn’t
  6. Boy Asked To Junior Prom In High School
  7. Tripping Over My Own Two Feet
  8. Bailing Hay Was Extremely Profitable
  9. Milking Cows For A Living
  10. Motorcycles- History With Them

Decision

Will be mostly a topical blog site with personal stories included inside with the diseases that have made an influence on my life (both good and bad)!

Intentional Blogging: Lesson #3

Voice

3 Adjectives

Intelligent, helpful, and loyal are the best three self descriptive words that pop into my mind.  This is really how my communications with other people come out!  My ideal reader is looking for answers or just help in general.  She is also cursed by a chronic disease of some sort.

Use her as avatar.  Her name is “Ruth”.  Ruth is in her mid thirties and is retired on social security disability from her office job in the cities.

Ruth
Ruth

Ideal Reader

My ideal reader is similar to my avatar except possible age differences.  He might be a care partner of an ill person or just know someone not in their best health.  They might just want to learn more for pure curiosity’s sake.

Sources Of Information

Get up-to date information from WebMD.  There I can research whatever disease or symptoms I might be investigating.

Visit the National Multiple Sclerosis‘s society’s web pages frequently.  Also visit the Mayo Clinic’s information on Fibromyalgia, since too many of my friends suffer from it.

 

Influences

Older movies I consider “classics”.  You know the 1984 movie “Footloose“.  The original 1984 Ghostbusters.

Music influences as a kid was strictly old country music you remember Patsy Cline and 50’s and 60’s rock.  My husband and I still listen to the classic rock songs from back then today!

Other people agree that this is actually how I sound in real life.  Am this clumsy every day in both my speaking and actual movements.  Continue to be the only person confined to a wheelchair that can still trip over their own feet!

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Intentional Blogging: Lesson #2

Subject

Chronic Diseases

Myself and too many relatives and friends to mention suffer from at least one chronic disease!  With myself, it is Multiple Sclerosis and asthma.  Some of my friends suffer from Fibromyalgia.

Know way too much about Multiple Sclerosis since I started experiencing symptoms while still in grade school!  The doctor I saw as a child thought I was just making up my unverifiable symptoms.  Basically he told my mom I was literally nuts!

Have already been writing about my personal experiences for well over a year, so doubt I will ever run out of new writing materials.  If they find the cure for MS, I might have problems coming up with new inspirations!

Theme

Helping Other People

 

Face it, we all struggle with our own illnesses!  Offer suggestions on ways to adapt toe the changes diseases make to our bodies.  Having experienced difficulties with doctors and diagnoses first hand, explain what to expect at the various stages of their own journeys in life.

Want to focus on helping other humans (prefer dealing with animals like cats and larger dogs), but am willing to try human contact.  If I know of a way too ease their pain, will try to suggest they give it a good “old college try“.

Plan On Making My Voice

A combination of practical and anecdotal.  Occasionally, my experiences turn out hysterically funny not by my choice though!  Kind of the live and learn sort of tales.

Objective

Want to develop a friendships (as close as you can become over the internet, anyway) with as many other members of the internet society as I can.  Am willing to give them as much time and assistance as mortally possible.

Want to leave an impression of a helpful fellow human.  Have always given the impact as a loyal smart friend in the past, want to leave my new acquaintances with that impression of my writings.

My goal is to have as many people subscribing to my email lists as possible.  Hope to have to upgrade my GetResponse account up to accept over 1,000 contacts!

 

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Updated Irksome Was The Prompt Given For Today By Word Press’s Editors

Irksome Avatar
Jeanette Hall’s Avatar
Her name is Ruth. She is a 30 year old professional woman suffering from several  chronic diseases. She is an extremely religious lady who likes to help other people.

 

Ruth Thinks You Need This:

Free information on building your own Tribe (audience).  Read the helpful information and try to give it to your audience!  Click on the link below to read the file!

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Your Irksome Mentor

Is just trying to help you get your message across to your readers or Tribe as she calls them.  Focus your message on your personal audience’s needs!  DO NOT display your writings for your own personal vanity’s sake.

What message Are You Sending?

Is it something helpful for your readers or is it just a bunch of filler on your paper / screen to amuse yourself?  Try collating useful knowledge to share with others!  Helpful lists or charts in an info-graphic are generally well accepted forms of educating people.

Am sure you have personal favorite go – to web sites you use for you research.  Why not share that list with others? Some of the sites I use regularly include:

Might be the thing that gains you life long followers of your own!

Try Sharing Your Own Writing Story

What made you first pick up your pen / typewriter to write?  Did you get inspired by someone or live through a life altering event?  A divorce or fire can shake anyone’s out look on life!  Share it with your readers so they can get to know you as a fellow human being.

What inspires you to write?

What Inspires You Personally To Write?

New Option

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  • Scenery? - 0
  • Wheather Events? - 0
  • Love? - 0
  • Simple Bordom? - 0
  • New Adventures? - 0
  • Constant Creativity? - 0
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In Summary

Try not to be irksome with your readers.  Give them what they want to read from you.  If they desire your story, share it with them.  In the case of a knowledge hungry audience, feed their minds on helpful enlightening facts that you have discovered!  Give them what they desire and your tribe will follow you to the ends of the Earth only if you lead them there!

2 Ghosts Haunting Or Not Our Lives

cat

Our First Two Cats

My husband and I adopted two kittens from the Downers Grove Humane Society in Illinois.  Mine was a jet black runt with 5 single white hairs.  His animal looked a lot like Sylvester from the Looney Toons cartoons. Except with feet that were way too big for the rest of his body!  We learned after a while, his cat was also cross eyed.

When my husband and I moved into our house in Colorado with our two adopted cats, never expected them to meet and befriend a ghost cat in the house!  My black cat would play with the ghost for hours on end.

Ghostly Bully

They would gang up on our other cat.  Then ignore him!  Guess even the ghost community has their own bullies! The ghost cat and our black one would thunder up and down the stairs from the upper level down to the garage level.  Stopping to jump on and off the 6 foot cat tower to annoy our other cat who ended up running into everything, because of his vision problems.

After 7 wonderful years of living in the house, we relocated to a home in WI.  The ghost cat unfortunately did not join us.  So my cat was missing his other wordly friend and the our old neighbor’s female cat, Patches that he seemed to have a crush on!  Patches wanted absolutely nothing what so ever to do with him.

More Relocations

We lost the cross eyed cat back in 2006 because it had be put to sleep due to being extremely ill.  The black one held on and arrived in MN with us alone in 2008 still missing his brother.  He survived two lonely years brother-less.  In 2010, he was euthanized because of continuous vomiting.  Still see him out of the corner of my eyes when I am feeling sad.  My husband says he sees both of the two brothers, the one with sight trouble following my black one faithfully.

We adopted another animal from the humane society to help me get settled into the apartment with out an animal.  My ghost cat does not like our new pet!  Now if I could only convince my ghost cat to knock the crap out of our current cat, who’s favorite past time is biting me!

The two ghost cats followed us to reside in our house here in Saint Paul, MN.  Not planning on any more relocations, since I am completely happy in this current home.  See my black one whenever I am feeling lonely or depressed.  My husband sees the other one following it faithfully, just like when they were kittens!

2 Ghosts Haunting Or Not Our Lives

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