Confirmation Page

You Did It!!!

You Have successfully subscribed to saintpblogging’s email list about chronic diseases!  Goal is to send out a new newsletter each week about a different chronic disease.

Successful Confirmation For Email Sign Up!

If you have interest in a specific ailment that has not been addressed, just send a quick email to Jeanette@saintpblogging.com  so that she can research the ailment to learn more about it.  Then it has the possibility of getting shared with the rest of the subscribers!

Return to Home Page

About: Writer Jeanette Hall

Picture Of Jeanette Hall

In her manual wheelchair.  Uses the chair to conserve what little strength she has to use each day.  The wheelchair is due to a disease that runs in her mother’s side of the family.

Was Not Diagnosed

Until over a year after she married her husband.  After her diagnoses, the rest of her family was finally given the name for their problems.  The local doctors just kept telling them they were all nuts!

Now her mother, her mother’s sister, and her two female cousins (her aunt’s daughters) all have an explanation for why their bodies decide  not to function properly.

They now know why, but there still is NO known cure.  Their vision goes out, coordination tends to be nonexistent, and legs may stop working, that is just the tip of the iceberg with Multiple Sclerosis!

To Donate

Help keep her mind from having it ravaged by the evil disease, simply click on the button below:


Save

15 Year Old Minnesota Boy Emancipated From Mother Due To Being Trans-gender

Is 15 Years Old Enough To Make Life Altering Decisions?

boy

The child is receiving food stamps, legal services, driver’s license (16 is the normal age to apply for licensing), medical and psychological assistance, as well as free housing from the state.  There are plenty of homeless adults that  live on the streets, why is the state so interested in changing this child’s life from male to female?  All against his mother’s wishes, I might add!

Click Here To Read News Article

Questions

How did this child come to realize he was not really a boy, but a girl in a boy’s body?  Just because he likes other males doesn’t make him trans-gender.  It may just be another gay boy.  Gay people are just like every other person.  They are just not very successful at having children resulting from their matings!  Adoption is always a way to share their lives with children down the road when they are a little older.

The boy’s mother has tried asking the child to come live back in her home, but the child has had his/her first taste of freedom.  So the state will continue to support this child’s life altering choices by paying for them!

Will the child end up graduating from high school while living alone?  Or will this end up being another human living on welfare for life?   The state should think twice before creating another non productive member of society!

Resulting In???

So what sort of future can this young human hope for?

  • Ostracization from others in society
  • Others following the person’s example (Is this something we should want?)
  • Diseases resulting in medical decisions made at age 15
  • Suicide

 

Save

Saving Money While Living With Multiple Sclerosis

Who Doesn’t Want To Save Money When Dealing With Medical Issues?

Handling Multiple Sclerosis

People who are suffering from any of the Multiple Sclerosis varieties (or know someone who does) have to let their feelings of daily confusion about what is happening to their lives get out or they may EXPLODE!!  Cleaning up after an explosion can be quite messy for the best of people who are in good health, so imagine doing it when you may not be able to stop shaking or even stand up while vomiting all over the place!  Not a pretty picture, is it?

Keep Hands On Wallet At All Times

Keeping a supply of generic Dramamine may help stop the spewing of your last meal on the floor (doctors will probably try to dispense the pricey name brand drugs), but try the generics if you are not allergic to any of the ingredients (money saving tips).  With all the medicines a person with MS has to swallow each day, try to keep the price of each pill that you wash down your gullet more cost effective.

You will be pleasantly surprised about the alternatives that exist to name brand solutions.  Just takes a little investigation time that will pay off with great dividends by saving a few pennies with each usage of the more reasonably priced product.  Even better solution may be to start shopping where you can purchase your pills and other life staples at a discount and/ or in bulk!

Make Pharmaceutical Friends

Let your local Pharmacist know that you read each prescription’s paperwork that is sent along with the medicine in great detail, by calling if you suspect there may be a negative reaction with other medicines in your normal daily routines.  You are not being annoying, you are just protecting both yourself and the pharmacologist in case of a chance of  interaction! A pharmacist in the family was the first person to stumble blindly into the fact I might have MS by me asking if he knew anything about a drug by the name of Avonex!

Continue reading “Saving Money While Living With Multiple Sclerosis”

Intentional Blogging: Lesson #4

Type

Topical

Pro’s- Endless supply of writing research available on the internet for free!

Con’s- Having to cut out way too many interesting topics due to personal time restraints.  Risking missing the one BIG break because of my inability to keep up fast enough.

  1. Multiple Sclerosis Clinically Isolated Syndrome
  2. Multiple Sclerosis Relapsing-Remitting Problems
  3. Multiple Sclerosis Primary Progressive Difficulties
  4. Multiple Sclerosis Chronic Progressive Challenges
  5. Multiple Sclerosis Secondary Progressive Horror Stories
  6. Fibromyalgia Added Headaches
  7. Diabetes Type 1: What Is Happening To My Body?
  8. Diabetes Type 2: Ups and Downs
  9. Parkinson’s Disease: One Shaky Episode After Another
  10. Depression Is Not Always Your Fault!
Personal

Pro’s- Face it, it is my life after all!

Con’s- Do I really want to blog about all my stupid choices in life?  Doubt my friends would want to be dragged into this hideous display of our lives!

  1. My Diagnosis’s Story
  2. Growing Up In The Middle Of Nowhere U.S.A.
  3. Being Classified As Gifted In Third Grade
  4. Molested And Raped By Man Who Should Have Been My Protector
  5. The Only Instrument Tried To Play But Couldn’t
  6. Boy Asked To Junior Prom In High School
  7. Tripping Over My Own Two Feet
  8. Bailing Hay Was Extremely Profitable
  9. Milking Cows For A Living
  10. Motorcycles- History With Them

Decision

Will be mostly a topical blog site with personal stories included inside with the diseases that have made an influence on my life (both good and bad)!

Intentional Blogging: Lesson #3

Voice

3 Adjectives

Intelligent, helpful, and loyal are the best three self descriptive words that pop into my mind.  This is really how my communications with other people come out!  My ideal reader is looking for answers or just help in general.  She is also cursed by a chronic disease of some sort.

Use her as avatar.  Her name is “Ruth”.  Ruth is in her mid thirties and is retired on social security disability from her office job in the cities.

Ruth
Ruth

Ideal Reader

My ideal reader is similar to my avatar except possible age differences.  He might be a care partner of an ill person or just know someone not in their best health.  They might just want to learn more for pure curiosity’s sake.

Sources Of Information

Get up-to date information from WebMD.  There I can research whatever disease or symptoms I might be investigating.

Visit the National Multiple Sclerosis‘s society’s web pages frequently.  Also visit the Mayo Clinic’s information on Fibromyalgia, since too many of my friends suffer from it.

 

Influences

Older movies I consider “classics”.  You know the 1984 movie “Footloose“.  The original 1984 Ghostbusters.

Music influences as a kid was strictly old country music you remember Patsy Cline and 50’s and 60’s rock.  My husband and I still listen to the classic rock songs from back then today!

Other people agree that this is actually how I sound in real life.  Am this clumsy every day in both my speaking and actual movements.  Continue to be the only person confined to a wheelchair that can still trip over their own feet!

Save

Save

Save

Save

Save

Save

Save

Save

Save

Retaking Blogging 101 (Now called Blogging: Fundamentals)

Am currently enrolled in Intentional Blogging by writer , Author Jeff Goings.  As far as this course is concerned, has been a long time since I took it last.  Who can’t use a refresher course now and then?

Met many friends that I still keep in contact with from my first course.  We share latest challenges in life and blogging.  Some people’s family’s have grown by birth of a child.  Some have actually started a business from what they learned while blogging!

Nothing is set in stone, if you do not like your blog’s theme you can change it!  Have been through at least a dozen different themes since I started blogging.

I tend to blog to help other people with chronic illness or simply old age.  The reason I no longer keep a diary is I cannot write legibly any more due to Multiple Sclerosis.

Hope to get a short book I have written published in the next year.  Also want to start making a profit from my blogging this year as well!  Who knows, stranger things have happened before.

Am used to including a lot of graphics in my posts, so that is why I am running short on words this time.  You will be introduced to adding graphics latter in this course.  Just stay tuned until we reach the end of our training.

Look forward to seeing what interesting creations you will introduce us to with your blog!  Make sure you share your posts with each other.

Jeanette Hall

Jeanette@saintpblogging.com

Need My MS Infusion NOW!!

Jeanette Hall
Picture of Jeanette Hall.

Receive Infusions Every 28 Days

That worked well back when I first started getting the medicine pumped into my veins back in 2010.  Was able to move around much better for the following 28 days.  Now, the effect lasts maybe a week at most!

By 2014 a meager 3 weeks was a good run from an infusion.  2015 2 weeks was tops for retaining my strength.  Now a week is the most I retain my muscle strength!

 

Just To Let You Know

Suffer from a chronic disease known as Multiple Sclerosis My mother might have it, but will not let doctors diagnose her with it.  Her sister (my aunt), and both her daughters(my cousins) have it.  Her son and my two brothers do not have it.  Only time will tell if my 2 nieces (my 2 brother’s female kids) start showing signs of MS!

We think my grandma (mom’s mother) may have had it, but since she was suffering from self induced cancers (cigarette smoker till the day she died), she didn’t want to go through with any testing.  The regular falling over her own feet should have set off warning signs!

The Picture Of Me

At the start of this page shows me in my manual wheelchair.  Am forced to rely on it to move around in the world today.  Fortunately, still have the strength to transfer myself from the wheelchair to other places without too much difficulties.  Transfer my self to my recliner, toilet, floor (how else could I play with our cat?), bed, you get the idea!

Gave up driving years before we moved into our house.  Rely now on a service called Metro Mobility.  They pick me up at the end of my wheelchair ramp which starts at our back door.  The ramp was built for me by Ramps.org .  They based our eligibility to have the ramp built completely free of charge on copies of our last two years income tax paperwork.

Since MS runs in my blood line, we decided not to have children.  Why curse an innocent child with an incurable disease?  We just settled for adopting pets.  Have great kids in the neighborhood in which we live currently!

In Conclusion

Do NOT spread chronic diseases if at all possible!  If your desire for kids is too much, there are plenty of children up for adoption already.  Since I am confined to a wheelchair, taking care of a child would be more than I could handle.  Also posses a short temper when faced with imperfections.  Face it, kids make mistakes, I’d blow up over their messes to quickly!

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Save

Updated Irksome Was The Prompt Given For Today By Word Press’s Editors

Irksome Avatar
Jeanette Hall’s Avatar
Her name is Ruth. She is a 30 year old professional woman suffering from several  chronic diseases. She is an extremely religious lady who likes to help other people.

 

Ruth Thinks You Need This:

Free information on building your own Tribe (audience).  Read the helpful information and try to give it to your audience!  Click on the link below to read the file!

14tribebuildingtips_final2

Your Irksome Mentor

Is just trying to help you get your message across to your readers or Tribe as she calls them.  Focus your message on your personal audience’s needs!  DO NOT display your writings for your own personal vanity’s sake.

What message Are You Sending?

Is it something helpful for your readers or is it just a bunch of filler on your paper / screen to amuse yourself?  Try collating useful knowledge to share with others!  Helpful lists or charts in an info-graphic are generally well accepted forms of educating people.

Am sure you have personal favorite go – to web sites you use for you research.  Why not share that list with others? Some of the sites I use regularly include:

Might be the thing that gains you life long followers of your own!

Try Sharing Your Own Writing Story

What made you first pick up your pen / typewriter to write?  Did you get inspired by someone or live through a life altering event?  A divorce or fire can shake anyone’s out look on life!  Share it with your readers so they can get to know you as a fellow human being.

What inspires you to write?

What Inspires You Personally To Write?

New Option

Confirm Add


  • Scenery? - 0
  • Wheather Events? - 0
  • Love? - 0
  • Simple Bordom? - 0
  • New Adventures? - 0
  • Constant Creativity? - 0
Submit
Results

To get included on my writing’s mailing list  fill out the form located below: 

Free Email Updates
Get the latest content first!
We respect your privacy.

Your information will not be sold. I PERSONALLY PROMISE!

In Summary

Try not to be irksome with your readers.  Give them what they want to read from you.  If they desire your story, share it with them.  In the case of a knowledge hungry audience, feed their minds on helpful enlightening facts that you have discovered!  Give them what they desire and your tribe will follow you to the ends of the Earth only if you lead them there!

2 Ghosts Haunting Or Not Our Lives

cat

Our First Two Cats

My husband and I adopted two kittens from the Downers Grove Humane Society in Illinois.  Mine was a jet black runt with 5 single white hairs.  His animal looked a lot like Sylvester from the Looney Toons cartoons. Except with feet that were way too big for the rest of his body!  We learned after a while, his cat was also cross eyed.

When my husband and I moved into our house in Colorado with our two adopted cats, never expected them to meet and befriend a ghost cat in the house!  My black cat would play with the ghost for hours on end.

Ghostly Bully

They would gang up on our other cat.  Then ignore him!  Guess even the ghost community has their own bullies! The ghost cat and our black one would thunder up and down the stairs from the upper level down to the garage level.  Stopping to jump on and off the 6 foot cat tower to annoy our other cat who ended up running into everything, because of his vision problems.

After 7 wonderful years of living in the house, we relocated to a home in WI.  The ghost cat unfortunately did not join us.  So my cat was missing his other wordly friend and the our old neighbor’s female cat, Patches that he seemed to have a crush on!  Patches wanted absolutely nothing what so ever to do with him.

More Relocations

We lost the cross eyed cat back in 2006 because it had be put to sleep due to being extremely ill.  The black one held on and arrived in MN with us alone in 2008 still missing his brother.  He survived two lonely years brother-less.  In 2010, he was euthanized because of continuous vomiting.  Still see him out of the corner of my eyes when I am feeling sad.  My husband says he sees both of the two brothers, the one with sight trouble following my black one faithfully.

We adopted another animal from the humane society to help me get settled into the apartment with out an animal.  My ghost cat does not like our new pet!  Now if I could only convince my ghost cat to knock the crap out of our current cat, who’s favorite past time is biting me!

The two ghost cats followed us to reside in our house here in Saint Paul, MN.  Not planning on any more relocations, since I am completely happy in this current home.  See my black one whenever I am feeling lonely or depressed.  My husband sees the other one following it faithfully, just like when they were kittens!

2 Ghosts Haunting Or Not Our Lives

Save